Organizations that focus on helping with the challenges of HPP are:
Canadian Hypophosphatasia Contact
A Canadian site that provides a listing of the various symptoms as well as a worldwide mailing list support system
A German site written in German that helps people with HPP and their caregivers to better understand the illness.
A Web site that offers information about HPP, including patient stories, patient rights, and research in Europe.
Hypophosphatasia Yahoo Group
A site where those in the HPP community can ask questions and learn from others.
Requires a sign-up with a Yahoo ID to see conversations and ask questions.
Soft Bones: The US Hypophosphatasia Foundation
Started in the United States in 2009, Soft Bones provides information and a community that educates, empowers, and connects patients living with HPP, as well as their families, and caregivers.
Soft Bones US Hypophosphatasia Foundation’s Group Facebook Page
An online HPP community Web site where people can ask questions and learn from others.
Anyone can read the postings, but you must have a Facebook account to ask questions and interact with members.